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Interview with a Person with a Disability: Extra Credit (Up to 20 points) For this extra credit assignment, you must: 1) Interview a person with a disability (e.g., physical disability, mental health condition, visual impairment, neurodevelopment condition). NOTE: Due to the current situation with coronavirus. I do not want you to have close communication with the public only due to your obligation for completing the REHB 200 assignments. Therefore, please consider other ways than a direct contact. For instance, you might consider conducting your interview using video applications, phone calls, Zoom, Face times, etc. 2) Write a three-to four-page report about your experience or findings (e.g., what you learned about the person, what you learned about the person's disability, what questions you have). NOTE: Please read STEP 3 to learn more about how you should format your paper.
Explain the purpose of the interview. Identify yourself (“My name is and I am a student in REHB 200...") Inform the interviewee that they have the right to stop or leave the interview at any time. Discuss disclosure: - "Are you comfortable sharing information about your disability/condition?" - "Do you want to be referred to using your name or a pseudonym/nickname in my report? Discuss preferred terminology (e.g., "person with autism" vs. "autistic person"): - "What is your preferred terminology? How do you like to be addressed?" Discuss accommodations or accessibility needs: - "Do you have any accessibility needs, such as a wheelchair-accessible location or a calm, quiet space?" - "Do you need any specific accommodations, such as a digital or print copy of the interview questions in advance or an interpreter?" - Note: If you are unsure about how to provide an accommodation, you can ask the interviewee for help or advice. a
STEP 3: The Report Your paper must have a title page including the title of the assignment, your name, and your class. Your paper should include following headings/parts: Part 1: Summary of your experience (5 points) Who did you interview? Where did you meet? How did you interview the person? How did you and the interviewee communicate? Part 2: Summary of the person's disability (5 points) What kind of disability does the person have? How did they describe it? Is the disability congenital or acquired? Is it stable, episodic, or progressive/degenerative? If the person seeks medical treatment, what treatments are available? If the person uses assistive technology (AT), what AT do they use? Part 3: Psychosocial factors (5 points) - How does the person feel about their disability? Does the person feel that there are strengths or benefits associated with their disability? Does the person feel that there are challenges or shortcomings associated with their disability? - Has the person experienced discrimination, stigma, or prejudice because of their disability? Part 4: Reflection (5 points) What did you learn from this experience? Will you use that information in the future? How did you feel about this experience overall? Was it exciting, challenging, comfortable, scary, or something else? What questions do you still have related to your interviewee, their disability, or anything else that came up over the course of this project?
Interview with a Person with a Disability 2 Summary of my experience I interviewed my brother Collin. He is my brother, so we have known each other all of our lives. He is three years older than me, so he is 23 years old. I interviewed him in my room. I asked the questions out loud and then he responded out loud while I wrote down what he was saying Summary of the person's disability My brother has Attention-Deficit Hyperactivity-Disorder (ADHD). He has always struggled with attention and hyperactivity since childhood but was not diagnosed until he was in high school. It took years of convincing out parents that it was debilitating for our parents to bring him to a doctor. Collin described it as a "battle to stay on task.” Every single one of our mother's children has ADHD to some extent so Collin's disability is congenital because it is genetic. When my brother seeks medical treatment, the only treatment really available to him is medication. He does not have any assistive technology, but he does take ADHD medicine. He has been tried to different ADHD medications. The first he was put on was Concerta. He had adverse reactions to this. He felt it helped his attention, but it made him sweat an obscene amount and his appetite dropped quite a substantial amount. He went off Concerta for a while until he went back to college, and he struggled hard in school, so he went back to a doctor to get more medicine. He told the doctor he had ADHD and the doctor prescribed him Adderall. He
was on this for a while until the Pandemic kind of through everyone for a loop. He felt his attention was good, but Adderall is very addictive and felt he should not be on it considering addiction runs in the family. He recently went back to the doctor, and he shared that he was put I on Adderall and the doctor felt it was strange that his previous doctor prescribed him Adderall. He was prescribed Concerta again and has been going good on it but says that he is still struggling with the excessive sweating. Interview with a Person with a Disability 3 Psychological factors My brother feels that his disability is "a blessing and a curse, things that I love and that can keep my attention I'm really good at. Things that I don't care about, I just can't seem to stay consistent with.” My brother is really good at video games and can play them non-stop for hours because he is interested in them but when it comes to schoolwork of a subject he isn't necessarily interested in and is taking because he has to he cannot seem to get any of his work done and procrastinates to the extent that causes him to not be able to pass any of his classes. When asked if he felt there was any strengths or benefits associated with having ADHD my brother felt that
a there definitely is. "The strengths are that I hit another level of hard work and interest when I find something I like." When asked about any challenges or shortcomings to having ADHD, my brother said “it is hard to stay on task, it's hard to do sometying for long periods of time if I'm not extremely interested in it. I just get distracted really easy." My brother says he has not experienced any discrimination, stigmas or prejudice because of having ADHD. ADHD is not a disability you can really see; the hyperactivity can be seen but it is seen more as being a "class clown" or the "jokester." Not many people know someone has ADHD unless they share this information. This would help explain why my brother has never really experienced any discrimination or stigmas in his life. Reflection I was originally conflicted if ADHD is considered an intellectual disability or not. But ADHD causes problems in learning, problem solving and daily life activities, so I think it is. I have always known about my brothers ADHD, and we tend to bond over not being able to pay attention very well. We have never really had a deep conversation about it though so I think this was a productive conversation and will remove any weirdness that may happen if we have a
Interview with a Person with a Disability 4 deep" conversation about ADHD. I didn't feel uncomfortable because he is my brother, if I was interviewing someone, I didn't really know then I would hale been uncomfortable because talking about your disability can be a vulnerable conversation. If I were to ask my brother anything I would ask him if he had the choice, would he choose to not have ADHD. Someone in my family who had a physical disability from a Diabetes recently passed away so if I had this project sooner, I would have interviewed them and I would have loved to have had this conversation with them. I think she would have taught me a lot about what it is like to not be able to live independently and rely on others to basically survive. She never let his disability get in their way, she always had a smile on her face and never let anything hold her back. If this person was still alive, I think I would have had a better conversation about disability considering how open she was. I probably would have felt a little uncomfortable. Sometimes people don't consider themselves to have a disability even though they do, and it might have been awkward to interview her about her having a disability because I don't think she ever considered herself "disabled" even though she was on disability and had to walk with a walker. This person taught me a lot about disability and if I didn't know her, I may have not been so empathetic and understand towards people with disabilities.